For 24 years, Grace Lindsey never knew a day without a seizure. Every time she woke – from a night of sleep or from a nap – she had a seizure. She had 100s of seizures throughout the day, every day. Every day for 24 years.
Her mother, Sheila Gill, describes a lifelong quest for answers and a cure. They talked with doctors and explored epilepsy centers in nearly every U.S. state and even reached out to providers in Canada and Belgium. But none of the diagnoses, medications or treatments brought Grace relief.
“She tried every seizure medication on the market,” Sheila says. “Many had negative effects on cognition and social development. She was never seizure-free for more than a day.”
