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Epilepsy Agency of the Big Bend (EABB)
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Epilepsy Agency of the Big Bend (EABB)
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    Hello, My Name Is Epilepsy: How Terminology Influences Stigma and Understanding of Epilepsy Around the World

    The terminology associated with epilepsy both stems from and feeds into the misinformation surrounding the condition. The word daura is associated with insanity, so many people in India see epilepsy, or mirgi, as…

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    Empowering people with epilepsy to lead the way in reducing stigma

    Stigma affects all aspects of epilepsy care, from diagnosis and treatment to nationwide legislation and budget allocations. It affects the lives of people with epilepsy when they are not given…

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    “Living with epilepsy should not be a secret”: Jessie Nyirenda

    The belief that people with epilepsy are possessed by demons is common in many parts of the world. Jessie and her mother went to churches to get the demons out…

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    Teacher training project aims to address stigma, increase inclusion

    Strong stigma means that parents may deny that a child has epilepsy, even if a community health worker has observed the child having seizures, said Dr. Sulena. And teachers and…

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    Epilepsy surgery outcomes: Two experiences, life-changing consequences

    Lissa spent three days in the epilepsy center, they did multiple testings—neuropsychological testing MEG scan, PET scan, all the scans, to try to decide if she was a candidate for…

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    How a tiny implant can stop seizures from happening

    So we have talked about all kinds of brain hacks, and we want to end our show with a very personal story. So for people with neurological conditions like epilepsy,…

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